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USAF VET-923294

Articles Posted: 111  Links Seeded: 133
Member Since: 3/2009  Last Seen: 5/15/2012

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When Government Health Care Almost Killed Me....(Part Three)

Wed Jul 29, 2009 4:34 PM EDT
health, health-care, usaf-vet
By USAF Vet-923294
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This is part three of my story of what happened to me. Part one and two are important to the whole story and I would ask tat you read those first. Thank you.

Part one maybe found here:

http://bad4.newsvine.com/_news/2009/07/28/3082118-when-government-heath-care-almost-killed-mepart-one

Part Two maybe found here:

http://bad4.newsvine.com/_news/2009/07/29/3084543-when-government-health-care-almost-killed-mepart-two

After six weeks in the hospital, I was given six months of convalescent leave. I was still approximately 50 lbs below what I had weighed when I first went to the sick call.

My mother spent everyday stuffing me with great food (she was pushing cheese cake the whole time) and I managed to gain 20 lbs during that time and returned to duty at lbs. Still 30 lbs below what I had weighed prior to the incident.

At follow up appointments, I was told that my appendix scare had rolled around and blocked off my intestine. The Doctor who had done the surgery told me that the doctor who had done the appendectomy had tied it off wrong and over time it had caused the problem. I told him that it had been done b an Air Force surgeon and he looked as if I had thrown cold water on him.

Later, I had another doctor tell me that appendix scares can do that anyway and that the surgery had nothing to do with it. Of course, I am smart enough to figure out that one doctor was trying to show that Civilian Doctors made mistake too. It is also possible the other Doctor who told me that it just happens was tying to defend the profession.

Rarely has any doctor heard the whole story. Most cut me off and begin to justify what happened. Yet, I have had two doctors that heard it all and hey told me that it was malpractice and inexcusable.

You see, the incident that I had just gone through was not the end of what happened.

Within a few months of returning to duty, I began to have blood in my stools again. I was also having occasions of nausea. I reported back to my surgeon and they ran several tests. I was tested for Crohn's and Ulcerative Colitis, but the tests came back negative.

The Doctor told me that he wanted to see every other month until the bleeding stopped. So, I made another appointment to see him. The problem was that he got short PCS (permanent change of station) orders and had left in between. When I got to the hospital clinic, I was told that I could not be seen without a referral from a normal doctor.

I made an appointment with one, but before the date came up, I started having the same problems again. Large amounts of blood in my stool and not being able to hold anything down.

I started going to the ER. One day they would give me Malanta and the next they would give me Donitol. This continue for fourteen days straight an I was never placed on quarters, so I had to continue to try to work while I was going through this. On the fourteenth day of going to the ER, the doctor tried to give me a mix of both medications and I threw up all over him.

That was enough to get me admitted and to see the surgeon. They did emergency surgery and this time instead of a resection, they bypassed the blockage that was described in the surgery report as a hard woody fibrous tumor.

The idea was that they would allow me to get better and then go back in and resect the bowel and remove the tumor. The Surgeon explained that it was probably due to the prior years surgery. They left me open and each day used a water pick to spray the opening. It was to help over come the infection that had set in. The problem was that I started closing up.

This led the doctors to decide to go ahead and close up the wound and to try to wait until I was much better. They explained to me that it was not a good thing to have so many surgeries in such a short time.

I was taken to the operating room and stripped naked. It was disconcerting for me to lay there naked in front of the whole OR team. They draped me and I heard the doctor come in. The next thing I heard was a loud "CHUNCK" sound nd my gut felt as if I had stabbed. I jumped and it dawned on the doctor that no one had given me any pain killers or even numbed the area.

Needless to say, I eventually was released from the hospital and followed by the doctor. I had several test runs over and over again. All of which turned up negative.

At one of those test, a barium enema, I was in for more of a surprise.

First, they had me lay on a table and then the uncovered my naked butt. Then they brought 20 people into the room to watch. They explained that they were medical students as if that makes you feel better about having your butt hanging out in front of a room full of people. I mean it wasn't as if I worked for "Chip N Dales."

Next, they inserted the tube, started the barium and the machine broke down. The next thing I know, I am waddling down the hall with this tube up my bum and twenty medical students gathered around me in a circle. Yeah.......Go ahead a laugh. Even I have to admit that the sight was probably hilarious. Besides, I laugh at that one too.

Eventually, I received orders and went to a new base. When I got there, I checked in with the surgeon as I had been told to do. This led to me being sent to a USAF Major Medical Center. They ran numerous tests and all of them turned up negative. However, they did find some ulcers.

Apparently, the surgeon had not sewn off the partially blocked area and I was getting a build up of bacteria from a back wash into that area.

I was sent back to my base and they waited for over another year to complete undo and fix the surgery. By the time the surgery was done, I had numerous ulcers in my small ad large bowel, had developed anemia and had developed chronic diarrhea with blood in my stools.

At some point, they added a pathology report from the surgery that showed I had developed Crohn's and another one that showed I had Ulcerative Colitis. These were found seven years later. Yet, in the mean time, I suffered from bloody diarrhea, stomach pain, weakness, and tiredness. I spent years going to the doctors and complaining about it, but the never did anything about it until the draw down started. At that time, the military medical community tried to identify as many people as possible that could be medically retired or discharged and I got caught.

When this happened, I did a ton a research and found out more about some of the things that had happened.

In the final surgery, they had found that one of my testicle cords had been accidentally cut and had been floating free inside of me. Just to name one. The Doctor had described me as being "messed up" inside. The surgery had taken three times as long as it was supposed to. I lost substantial portions of my intestines (all of the terminal ileum, part of my mid ileum, my ileo sphincter, and portions of my large bowel).

After they discovered the report that showed that I had Crohn's and the other one that showed that I had UC, they started treatment on me. Since then, I have had a lung collapse from a fistula that developed under my abdomen, had multiple infections from fistulas and six more surgeries. I suffer from B-12, calcium, and iron deficiency. I have developed arthritis ( a cousin to Crohn's) in my knees and hands.

I have been on most every medication for IBD and none of them have been able to fully control the disease.

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USAF Vet-923294

In this final part of my story, I have actually glossed over several areas to speed the story along. As I said in part one, this is a very long story that covers over twenty-five years.

I have not covered the experience that we went through with my wife. Which is very similar to my story even though they did not come close to killing her. Still, it is not a good story either.

  • 8 votes
#1 - Wed Jul 29, 2009 4:41 PM EDT
jscusmc69

G DAMM USAF--and I thought the @!$%# at Emory--MRSA STAPH was bad---well it is bad and can kill ya----BUT what these ASS wipes did to you crap if I had been you I think I would have gone POSTAL--.45 at CLOSE range---toasted them all!!

And worry about the charges later---temp crazy would have gotten ya off!!

Sorry had to laugh at your butt hanging out---a picture I can't see!!!LOLOL

I would see if YOU could sue the AF now---you got the same email from Mil.com I did--OR at least run this by your congress man see IF you can't get some kind of satisfaction. OR find the Docs and if they are still practicing trash them in the press!

  • 7 votes
#1.1 - Thu Jul 30, 2009 5:02 PM EDT
USAF Vet-923294

Actually, when they tried to retire me they offered me 5% temporary medical retirement. I found the regulations and painted out that they had to try to treat me first.

They sent me to David Grant at Travis AFB and try to treat me.

When I got there, I got all o my medical records and did weeks of research through medical journals.

Then they boarded me a second time and it came back at 30% temporary. I challenged the board with more regulations, because they had me down as having Crohn's and Ulcerative Colitis. With Ulcerative Colitis, they can do a surgery and remove the large bowl and you have no more problems with the diseases which would have made me qualified to stay in.

They started giving me a hard time to force me to accept the retirement and I want to town.

I wrote my Congressman and blew the whistle on them for many infractions of the system that were against the regulations and the fact that they had committed malpractice.

Then, I sent a package to the board that was over two thousand pages long and fully outlined everything that had happened and everything that was shown in my records as bing wrong.

They tried to turn the heat up more with several items, but I had prepared for it and researched out the regulations. I had also gotten my Congressman's personal phone number. When they started pulling crap, I would ask to use their phone, pull out the phone number and tell them who I was calling - I never had to complete he call, they gave in quickly each time.

When the board came back, they offered me 60% permanent retirement and I accepted.

I know it lead to some changes. Yet, I was doing it more for my family then for anyone else, but I had hoped it would make it easier for others who were in the same boat.

  • 8 votes
#1.2 - Thu Jul 30, 2009 6:36 PM EDT
jscusmc69

I'd a stuck it to them for 100% or threatened to make it public record!

Sorry to hear about your wife Ben.

I lost a Daughter my oldest due to doctors Fvck ups and miss-diagnosis in 2005. I tried to have their heads 4 and only got 1. My 4 Grand Kids from her are without a mother because of them---Her husband never went after them like I told him to.

  • 7 votes
#1.3 - Thu Jul 30, 2009 6:58 PM EDT
cookin mama

js sorry to hear about your daughter, that really sucks that the kids have no mommy do to the f'n morons.

  • 5 votes
#1.4 - Thu Jul 30, 2009 7:07 PM EDT
jscusmc69

I almost did---Was going to go to the hospital---POSTAL!

  • 4 votes
#1.5 - Thu Jul 30, 2009 7:28 PM EDT
USAF Vet-923294

Well, I am at 100% by the VA.

My wife had several miscarrages due to screw ups and there was also several bad paps that they jus put inher record and never told anyone. Those were found by us when we got copies of her records for a doctor downtown.

Sorry to her about your daughter. That one is worse then mine. At least I lived.

  • 6 votes
#1.6 - Thu Jul 30, 2009 7:31 PM EDT
jscusmc69

Thanks Ben--I had just had the 4th MRSA surgery in Atlanta and had 3 drains sticking out on my belly,just got home in fact when the call came from Chicago---PISSED off the EX and some because I could not travel--no way could I get there at the time.

So for that there are still some Piss poor excuses of doctors that STILL have not met me and don't want to---Im here in Chicago now and these ass wipes or 2 anyway have moved somewhere else---I will find them!

  • 4 votes
#1.7 - Thu Jul 30, 2009 9:56 PM EDT
USAF Vet-923294

I wish you all the luck and hope you put them out of business. I know it is too late to be of advantage to you, but it just may save someone else.

  • 5 votes
#1.8 - Thu Jul 30, 2009 10:09 PM EDT
cookin mama

js I went and looked that and ewwwwwwwwwww. what a nasty thing you got from those bastards.

It's not right.

  • 2 votes
#1.9 - Thu Jul 30, 2009 10:28 PM EDT
jscusmc69

Ya was something else I was in the shower had NO indication anything was wrong inside me--none. Was getting ready to go to the Marine Ball in 2000 and coughed! ALL it took Hole opened at the base of my sternum and all kinds of foul smelling green and black crap came out the more I squeezed my gut the more spurted out. when I figured I had all out I stuffed a clean wash cloth soaked in rubbing alcohol in the hole called the doc at Emory which was 32 miles from were I lived---HE said get there asap--Called 911 and they said I should go Back to Emory to!--911!! more fools.
I got there ---DROVE my self and walked into the Emergency room YOU should have seen people get out of my way.Blood soaked FOUL smelling towel over the Wash cloth!
4 weeks later it was deemed I could go home---THAT 4 weeks was a trip they kept the CLEAN out INCISION open and the Antibiotics cost 800 for 5cc---Was worse than any other Hospital time in my life INCLUDING in the Marine Corps.

  • 5 votes
#1.10 - Thu Jul 30, 2009 10:52 PM EDT
USAF Vet-923294

God that sounds awful! And Awful painful. I know what it is like to stay open for sometime. That can be disconcerting to look down and see a gapping hole in your gut.

Cost is really something that should be looked at in the national debate. I am all for business making a profit, but not one that is so huge with so little return.

  • 5 votes
#1.11 - Thu Jul 30, 2009 11:05 PM EDT
jscusmc69

Agree with you Ben---cost---In the case of Emory I never have gotten a bill---nothing even after all the additional surgeries there.AND I better NOT--course with the law suit THEY hope I die!!

I had a hole about the size of your thumb at the original site--base of sternum--I had to clean and dress it for over a year--you know heal it like a bullet wound from the inside out. 3x a day!!!

My daughter Denise who is 24 now used to watch and she would say-- HOW the Hell can you do that Dad---as I pulled about 3 feet of gauze packing out! I said easy---NO Pain!! and there really isn't when all that is there is fatty tissue and the skin layers. AND the pain sensors in the skin are dead!

"disconcerting to look down and see a gapping hole in your gut"---ROFLMAO---Ben you had the same---what you said IS an UNDERSTATEMENT!!

  • 4 votes
#1.12 - Thu Jul 30, 2009 11:27 PM EDT
USAF Vet-923294

I had four holes the size of the tip of your thumb in my gut that were packed with gauze, another one (at a different time) on my butt that was packed with gauze and one on my gut that went from my sternum to my pelvic bone and was about three inches deep (at another time). The last one was the one they took a water pick to each day.

The one on my butt was from a fistula and also had a tube that had blades on the end. My wife had to turn the tube three times a day to break up adhesions. She also had to unpack and repack that on. I LOVE my wife, she has put up with a lot - including my normal BS.

  • 5 votes
#1.13 - Thu Jul 30, 2009 11:41 PM EDT
robertlyn-schultz

Hey everyone

Oh my, I am feeling allot more comfortable with the "herbs and roots" natural medicine approach to medicinal/wellness care (self-treated) the more I read about "modern medicine" and it's results . F*ck a duck, is there not something about "first do no harm" anymore? No wonder why I don't like the over-educated pin-heads in white smocks nor the Places they work. Check out these stats I found:

In The JOURNAL of the AMERICAN MEDICAL ASSOCIATION (JAMA) Vol 284, No 4

Dr Barbara Starfield, MD, MPH, of the Johns Hopkins School of Hygiene and Public Health, shows that medical errors may be the third leading cause of death in the United States.

The report apparently shows there are 2,000 deaths/year from unnecessary surgery; 7000 deaths/year from medication errors in hospitals; 20,000 deaths/year from other errors in hospitals; 80,000 deaths/year from infections in hospitals; 106,000 deaths/year from non-error, adverse effects of medications - these total up to 225,000 deaths per year in the US from iatrogenic causes which ranks these deaths as the # 3 killer. Iatrogenic is a term used when a patient dies as a direct result of treatments by a physician, whether it is from misdiagnosis of the ailment or from adverse drug reactions used to treat the illness. (drug reactions are the most common cause).

Or this one about Hospitals:

"To Err Is Human: Building a Safer Health System" at http://www.nap.edu/books/0309068371/html/ - Show medical errors as a leading cause of death.

Based on the findings of one major study, medical errors kill some 44,000 people in U.S. hospitals each year. Another study puts the number much higher, at 98,000. Even using the lower estimate, more people die from medical mistakes each year than from highway accidents, breast cancer, or AIDS. And deaths from medication errors that take place both in and out of hospitals are aid to be more than 7,000 annually.

The CDC does not break-down US deaths by medical error, but I did find this:

CDC strives to understand how healthcare-associated infections happen and to develop appropriate interventions. A new report from CDC updates previous estimates of healthcare-associated infections. In American hospitals alone, healthcare-associated infections account for an estimated 1.7 million infections and 99,000 associated deaths each year. Of these infections:

  • 32 percent of all healthcare-associated infection are urinary tract infections
  • 22 percent are surgical site infections
  • 15 percent are pneumonia (lung infections)
  • 14 percent are bloodstream infections

Source

Well I suppose that allot of the Obamacare legislation will be geared toward correcting these shortcomings in our "Health Care System" as opposed to fiscal concerns. -/sarcasm

Scary stuff, I do not want to pick-up any wee-little nasties - and going to a hospital seams be a pretty good way of doing just that.

Strength and power to you all,

Aloha

  • 3 votes
#1.14 - Fri Jul 31, 2009 4:51 AM EDT
USAF Vet-923294

And they wonder why malpractice insurance is so high and malpractice suits are so prevalent.

  • 5 votes
#1.15 - Fri Jul 31, 2009 1:33 PM EDT
frostyone

Dude I couldn't help but laugh at the picture of you with a tube up your bum surrounded by the Med students walking down the hall. I'm glad to see that you are still around and kicking and i am gratefull that you decided to share this story. I hope that it gives people pause when they are considering govt. run health systems. Take care and God Bless.

btw I'm still trying to get the pic out of my head.

  • 4 votes
#1.16 - Sat Aug 1, 2009 9:27 AM EDT
USAF Vet-923294

I was very red at the time, but now I have to laugh. When I sw the movie the "Right Stuff" and "Armagedon" with the guys hunched over and waddeling with their IV poles, I can actually empathize!

  • 3 votes
#1.17 - Sat Aug 1, 2009 1:33 PM EDT
frostyone

remembering the movies is what brought such a vivid pic to my mind. I figured thats what it must've looked like.

  • 1 vote
#1.18 - Sat Aug 1, 2009 3:23 PM EDT
Reply
Soovivers

Wow Ben - you have been though a lot of stuff and most -well some, unnecessary. That is way too sad to hear this about the military and 'normal doctors' too. I like that part where they wanted you to see a 'normal' Dr. I'm surprised there are any around.

It's good that you can joke about it because some people get bitter you know and let it ruin their life. I know Crohns doesn't go away but I hope you are feeling better in general.

  • 6 votes
Reply#2 - Wed Jul 29, 2009 5:24 PM EDT
USAF Vet-923294

Actually, I am still better about some of it. Other things I have put into perspective and realize that it was not the doctors (like the machine breaking down).

I have also met some very good doctors in the military. My first GI Doctor was wonderful. She listened to me and discussed everything. She took my care as if it was her own and treated me as if I was human. She is an outstanding member of the medical community.

It has been a very long learning process. I now know within a few minutes if the doctor is good, mediocre or not worth a grain of salt. At the VA, I have asked that I get another doctor when I feel that the doctor is not that good.

  • 5 votes
#2.1 - Wed Jul 29, 2009 5:47 PM EDT
Soovivers

asked that I get another doctor when I feel that the doctor is not that good.

My hubby has done that too. But mostly he stays away from the local VA. I know there are some good ones but ours really stinks. Anyway thanks for writing these for us Ben!

  • 6 votes
#2.2 - Wed Jul 29, 2009 7:09 PM EDT
USAF Vet-923294

I have to go to the VA. One of my medications cost about $25,000 every eight weeks and I don't have private insurance. I do have Tri-Care, but the deductiblae woudl eat us alive.

  • 4 votes
#2.3 - Wed Jul 29, 2009 10:05 PM EDT
Soovivers

deductible would eat us alive

Ben - I know what you mean - we are lucky I guess - I have medical and dental through my employer (before I retired). We do pay 550.00 a month for it plus I get medicare for another 140. or whatever but I also have meds that are expensive (not as high as yours tho) but over a thousand a month.

So without the insurance it would be more then what we pay for it. I still don't want the government health care bill they are talking about though. It's damned if you do and damned if you don't on medical.

At least they finally found out what you had and were able to diagnose and treat it and that's a good thing huh ?

  • 3 votes
#2.4 - Thu Jul 30, 2009 8:55 AM EDT
USAF Vet-923294

Now this is one of the things on the other side of this debate that gets me.

First - They talk about the success of Medicare, but people pay that their whole lives and can not use it until they get to be retirement age or are disabled enough to need it. Then, it does not cover you completely and the Government dictates how much they pay.

Think about it. Every working American pays this and only a small portion of the population use it.

Second - The price of healthcare is getting out of hand.

Using Sooviver's example > $550 + $140 = $690 a month x 12 months = $8,280

Minimum wage is only $7.25 and that is only $15,080 annually. That is over their income for insurance and it doesn't even cover them fully!!

  • 4 votes
#2.5 - Thu Jul 30, 2009 1:11 PM EDT
Soovivers

That is over their income for insurance and it doesn't even cover them fully

That is so true Ben. On top of the insurance costs we still have RX costs of about 200.00- 300.00 a month that is the co-pay. Plus when we go to the Drs we have to pay them until the deductible is met. This month alone I've paid over 1000.00 for med bills from cancer and radiation. If I had to do that every month (pay Drs) there is no way we could afford to live.

But what is the government going to offer that is anywhere near the care I have now at a lesser cost? Will we be able to go to our Drs that we've gone to for 20 years or will we have to change? How long will we have to wait to get into a Dr?

From what I've read and heard about Canada and England's health care plus what is in the health care bill - well I don't want anything to do with it. Since they can't even handle Medicare how in the world can they ever handle something like national health care?

Seems like everyone wants a piece of the action and there are too many loop holes that will take up more money. Sorry I got carried away on this but I'm worried.. What cha think Ben?

  • 4 votes
#2.6 - Thu Jul 30, 2009 5:29 PM EDT
USAF Vet-923294

I understand your worry and it is shared. Health care is the biggest industry in America and there needs to be more debate about the costs associatd with health care. Simple insurance for the poor will not solve the problem.

The whole system needs to be looked at and debated. I am not advocating agaisnt the medical industry (although, I probably do have more reason to do so then some), but I do feel that any solution needs to be fair to all, not just one side or the other.

from cancer and radiation.

I am sorry to hear that. It can be rough on the patient and family as well. Good luck and may God bless.

  • 4 votes
#2.7 - Thu Jul 30, 2009 6:48 PM EDT
cookin mama

agreed

  • 2 votes
#2.8 - Thu Jul 30, 2009 7:08 PM EDT
Soovivers

needs to be more debate about the costs associatd with health care

I think so too Ben - what's the rush I wonder? Why can't they take time to figure out the best system instead of all of this rushing around.

About the other - I'll be okay - think they got it all and the chance of return is less then 10% if I was to believe the medical community. And that is still open for discussion... ;-)

  • 3 votes
#2.9 - Thu Jul 30, 2009 7:20 PM EDT
USAF Vet-923294

I think so too Ben - what's the rush I wonder? Why can't they take time to figure out the best system instead of all of this rushing around.

That is politics. You see, we are coming up on the 2010 elections and many that are up for re-election need to have this out of the way. Democrats need it to look like a victory and Republicans need to make it look, at the least, as if they forced compromise.

The Democrats are also concerned that the lack of passage will make it look as if they can not do anything even with a super majority.

There is also concern that bills that hang around too long do not get passed. The longer it is out there, the more people can chime in and pick it apart for one reason or another.

I am wit you on his. I wish there would be long deliberation, debate and thoughts to come up with the best possible bill that will be as fair as possible for everyone.Yet, the political system does cause problems.

I am glad to hear that it is good news for you. My Father passed away from cancer and then my mother in law did. It was pretty tough and very expensive.

  • 4 votes
#2.10 - Thu Jul 30, 2009 7:46 PM EDT
cookin mama

My mom had breast cancer survived, but Alzheimer got her.

soo i am so sorry to hear that you had cancer. I am hoping that that they did get it all.

  • 3 votes
#2.11 - Thu Jul 30, 2009 10:41 PM EDT
Soovivers

Thanks cm - I hope they got it all too. Only time will tell....

  • 3 votes
#2.12 - Fri Jul 31, 2009 8:34 AM EDT
USAF Vet-923294

Here is hoping for the best.

  • 3 votes
#2.13 - Fri Jul 31, 2009 1:35 PM EDT
Reply
chelli

Man, I think I'd have shelled out my own money to go to the Mayo Clinic or some specialist before going through all that again with the military. I can't believe you went back in and they pulled the same crap that they did the first time--full well knowing your medical history! It certainly seems that many of the doctors you saw were pretty heartless when dealing with patients. At least you can laugh about the machine breaking and having to walk down the hallway still attached--I think I may have tried to kill somebody ;-) Hopefully the very worst part is over and you can maintain with the problems you have remaining. It's no wonder you are/were anemic and have deficiencies with all the bleeding. It just blows my mind that many of those doctors are still practicing--some probably have moved away from military and are treating patients in private practice. There should have been someone there to advocate for you during this--and to make sure it never happened to another person again. Take care.

  • 5 votes
Reply#3 - Wed Jul 29, 2009 6:03 PM EDT
USAF Vet-923294

Actually, all of this lead to a Congressional investigation by my Congressman. That led to my retirement from the military with a 60% disability. I know that much of my story led to many changes, although I do not know exactly what changes.

I do know that some doctors were caught by the military who had joined after they had lost their license and that one particular state was GIVING them temporary licenses. It was move on the state part to try to help the military, but it was allowing bad doctors to practice in the military.

  • 6 votes
#3.1 - Wed Jul 29, 2009 10:17 PM EDT
cookin mama

We need a way to track bad Drs. who lose there license to practice bad medicine and go from state to state.

  • 6 votes
#3.2 - Wed Jul 29, 2009 10:33 PM EDT
chelli

Ben, at least you know that something good has come from it. It's just so hard to know that it was at your expense :-( Simply unforgivable that anyone would recieve that kind of treatment. I'm guessing that you pushed the issue to change the system. If so, then good for you--we need people to stand up for each other and fix things--especially when they have endured something as horrible as you were forced to. It takes a strong person to go through all of that and stand up so that others will not have to.

  • 4 votes
#3.3 - Thu Jul 30, 2009 1:03 AM EDT
USAF Vet-923294

Yeah, I fought them. Although, it was years laters when they pushing for my retirement. They had just finally stepped on me one time too many and I wrote my Congressman and my Senator.

They gave me a hard time when I did that, but when they started to claim that it never happened, I pulled out the thousand some odd pages of my medical records. I had already highlighted the areas and marked them. I will never forget the look on the investigators faces.

Shortly after that, they offered me 60% retirement and I accepted it. So, I did not get to see the changes first hand, but some friends wrote and told me about many of them.

  • 5 votes
#3.4 - Thu Jul 30, 2009 1:37 AM EDT
Reply
rottlady

Ben, I know it couldn't have been easy to share all of this with us but it does help explain things. I'm so sorry to hear how badly you were treated. My heart goes out to you.

  • 7 votes
Reply#4 - Wed Jul 29, 2009 6:29 PM EDT
USAF Vet-923294

Thanks Rottlady. I appreciate the sentiment.

  • 6 votes
#4.1 - Wed Jul 29, 2009 10:19 PM EDT
Reply
robertlyn-schultz

OK Ben,

I am so thankful you are still kicking my friend!

You got pt. III up quick, I guess as the story started to "flow" it rapidly built to flood stage. :^)

Sad (to say the least - criminal is more like it) the decisions made so long ago in some nameless sick-call clinic led to25 years of suffering.

All my best Brother,

Aloha

  • 6 votes
Reply#5 - Wed Jul 29, 2009 6:41 PM EDT
USAF Vet-923294

You got pt. III up quick, I guess as the story started to "flow" it rapidly built to flood stage. :^)

Actually, I kind of rushed through it and skipped many parts. Things like receiving the wrong medications; the day a doctor tried to BS me by using Latin only to find I had taken three years of Latin in high school, so I knew what he had said (should have seen the look on his face); or the way that my wife had been treated.

I think I just wanted to finish it. I could easily fill a book on the things that happened.

  • 6 votes
#5.1 - Wed Jul 29, 2009 10:35 PM EDT
Reply
cookin mama

Ben have they tried remicaid(sp). My niece got chron's at 16, almost died from it. She gets it through an IV every 2 months.

That you aren't a totally bitter man is amazing to say the least.

  • 6 votes
Reply#6 - Wed Jul 29, 2009 7:44 PM EDT
USAF Vet-923294

I am currently on a double dose of Remicade. They just recently moved it up to ever eight weeks from every six weeks. It has helped more then any other medication so far, but still does not totally control it. I have several bouts each month and occasional problems with fistulas, but I have stopped bleeding as much. I also have started having more energy although I keep catching these blasted colds.

  • 6 votes
#6.1 - Wed Jul 29, 2009 10:41 PM EDT
Soovivers

I keep catching these blasted colds.

Well Ben I am just so glad you made it and are here on NV - you are quite a friend and I am glad I was able to meet you on here. :-)

  • 2 votes
#6.2 - Thu Jul 30, 2009 8:58 AM EDT
USAF Vet-923294

Thanks Soo.

The cold thing (or flu or othe things) is frustrating. The medications weaken the immune system and make me vulnerable to those things. My wife, kids and vistors to our home have to stay away from me when they catch a cold or flu, but some how it still gets me.

  • 3 votes
#6.3 - Thu Jul 30, 2009 1:15 PM EDT
Reply
anonymous-1077600

Ben that was sad all the people that should have helped you hurt you more. You really are a strong individual and at least your still here, unfortunately they effected your whole life, it is a shame you couldn't get the help you needed until you almost died. Your story wasn't long including all 3 parts, you really make a person think about how people are ignored in healthcare and how the doctors and nurses don't always listen to people but decide to label them instead. I wish you much better fortune in the future.

  • 3 votes
Reply#7 - Thu Jul 30, 2009 4:15 PM EDT
USAF Vet-923294

Thank you. My care has substantially gotten better. I learned to raise hell (and how to raise hell within the system withoutcome off as a nut) when it isn't and to not automatically trust doctors.

More then once I have told a Doctor upfront that I don't doctors and that they would have to earn my trust and respect. Most that I have told that to have made every attempt toprove my mistrust wrong - that has been a good thing.

  • 4 votes
#7.1 - Thu Jul 30, 2009 4:28 PM EDT
anonymous-1077600

I have a relative that told off a doctor for not listening to them because they had the medical problem for years and knew what they needed and that the doctor hadn't been practicing medicine for as long as they had their illness. (lol)

  • 2 votes
#7.2 - Thu Jul 30, 2009 4:42 PM EDT
USAF Vet-923294

I have actually had a few Doctors at the VA who have said that they wanted my input, because I have had the disease for so long and knew more about myself and how I handled the disease then they ever could.

That has been more resent, but the younger Doctors seem to stick with that. Perhaps the medical community is learning something. ;0 )

  • 4 votes
#7.3 - Thu Jul 30, 2009 6:52 PM EDT
anonymous-1077600

Ben I think that is great that the doctors are asking you about your knowledge of your illness, it does show that they are learning to listen a little bit more to some patients. Unfortunately you may still be in the minority.

A long time ago someone told me that many doctors that have had many complaints went into the military because they were the only ones that would hire them.

  • 2 votes
#7.4 - Fri Jul 31, 2009 2:16 AM EDT
USAF Vet-923294

I actually knew (found out after all of these problems) that one state was "giving" temporary medical license out to military doctors and the military was not checking out doctors that joined. This meant that several doctors who lost their licenses were able to still practice by joining.

Since that time, the loop hole has been closed by both the state and the military.

  • 4 votes
#7.5 - Fri Jul 31, 2009 2:24 AM EDT
anonymous-1077600

It's nice to hear that they closed the loop hole. It is already bad enough for our most recent Vets, let alone doctors that are practicing bad medicine.

Some of my family had to deal with a Vet that at that time didn't get any kind of mental health treatment for the stress they suffered in a war and took it out on family members. There is still not enough emphasis being put on the mental welfare of our soldiers today. It appears to only be to placate the general population without enough serious endeavors on the military's side.

  • 4 votes
#7.6 - Fri Jul 31, 2009 3:57 AM EDT
USAF Vet-923294

I feel that there ar many stories like these that should not be left out of the health care debate.

  • 4 votes
#7.7 - Fri Jul 31, 2009 2:06 PM EDT
Reply
judi fermanich

Many doctors are behind when it comes to new information and you guys are right about the fact that the person with the disease, or condition has had it a long time and knows his own body.

It pays to ask questions of your doctor, any doctor and demand answers. If you aren't satisfied, then see another doctor. It is really the responsibility of each patient to qualify his care. USAF was in a bad situation because you cannot question doctors in a military unit. It not only is frowned on, it is not allowed. GIs in any branch feel the same frustration when they hit sick bay. It is a damned shame!

  • 6 votes
Reply#8 - Thu Jul 30, 2009 7:35 PM EDT
USAF Vet-923294

Thank you for your comment.

I think Doctors should be taken out of the normal rank structure for that very reason. Personnel are taught to follow orders and military Doctors learn they can throw that rank around.

  • 4 votes
#8.1 - Thu Jul 30, 2009 7:50 PM EDT
Reply
Stephanie, RN

Again, thank you so much for sharing. I am very proud of you. I know it wasn't easy to share.

  • 3 votes
Reply#9 - Sat Aug 1, 2009 9:43 AM EDT
USAF Vet-923294

Thanks Steph. It was very hard to write. I appreciate your support in this.

  • 4 votes
#9.1 - Sat Aug 1, 2009 1:35 PM EDT
Reply
Perrie

Hi Ben,

I didn't realize that you had published the 3rd part.

All I can say is this....as bad as your experience was with military hospitals, I know of 4 different f ups like this one in civilian hospitals, including myself.

Remember back to that first surgery I had on my neck. Well after the surgery, during Hurricane Gloria, 6 days post op, all my stitches in my neck ripped. You could actually see the inner workings of my neck. We ran during the hurricane, back to the hospital, where I was sewn up quickly, but I couldn't straighten out my head. I went through months of rehab. After I could hold my head straight. After that we noticed that I had a huge hole in my neck. But I did nothing about it. When the second tumor came back 3 years later, a different surgeon did the operation. He noticed the big hole in my neck and told me that he could make the scare smaller and less painful (I had an adhesion) if I would like, so I did. He was horrified. The reason I had a hole in my neck and I couldn't straighten my head up, was because the dr. who sewed my neck together, never put the two sides of the muscle wall together, so the hole was actually where the muscle should have been put together.

I hate to hear about the pain and suffering that you went through...but if there is one thing that I must say at this point...is DON'T TRUST DOCTORS! Always get your records. It is your right! Always do your research. We have the Internet now. I have actually found more info about my problems than any so called specialist. Dr.s are just humans with a skill, and some knowledge. Always question them and never take anything they say as fact. If they get arrogant, they are not the dr for you.

OK I'm off your soap box.

In any case, I hope that you are feeling better, and that they haven't done permanent damage to your body. You should find out if you which you have colitis or Crohn's since Crohn's is an autoimmune disease. You could develop problems with your eyes if you have Crohns, so it is important to check and see if you have the antibodies for it. Also you could develop sjogrens syndrome, which affects all mucus tissue.

If you ever are in doubt about something medically, I am pretty good with my medical knowledge and research. Just give me a call, and I'll be there, my friend!

((((((ben))))))

  • 4 votes
Reply#10 - Sat Aug 1, 2009 11:00 AM EDT
USAF Vet-923294

..is DON'T TRUST DOCTORS! Always get your records. It is your right! Always do your research. We have the Internet now. I have actually found more info about my problems than any so called specialist. Dr.s are just humans with a skill, and some knowledge. Always question them and never take anything they say as fact. If they get arrogant, they are not the dr for you.

Yeah.....I learned that the hard way. My biggest problem was that it was in the military. I could not change doctors, and had so little experience in the service, that I did not know how to challenge a superior officer. Eventually, I learned how to do it.

In any case, I hope that you are feeling better, and that they haven't done permanent damage to your body. You should find out if you which you have colitis or Crohn's since Crohn's is an autoimmune disease. You could develop problems with your eyes if you have Crohns, so it is important to check and see if you have the antibodies for it. Also you could develop sjogrens syndrome, which affects all mucus tissue.

Eventually, I did get somewhat better. Unfortunately, there has been permanent damage.

Sorry, as I said above I glossed over a bunch. They did find out that it was Crohn's. I did a ton of research in the early 90's when they were boarding me. We got copies of my records, and since we did not have the internet at the time, I read several medical journals (using a medical dictionary) about the disease, the surgeries, the medications and about other associated problems I had developed from the Crohn's.

I get my eye checked for the disease, but that is not all that Crohn's can effect. There are other similar diseases that can surface from it. I have arthritis type symptoms in my knees; I have problems with fistulas (little tunnels that lead from the bowel to other organs or areas and can poison those organs, cause abscess, peritonitis, infection, etc.); nerve damage from medications; bone thinning and kidney stones from calcium depletion; Etc. - let's just say the list gets very long without mentioning all the side effects of medications that I go through.

I actually have a very good doctor at the VA (now). He is a Professor At OU Medical Center and watches me like a hawk. He has told me that I am the worst case he has ever seen - not sure he means the disease (LOL!).

If you ever are in doubt about something medically, I am pretty good with my medical knowledge and research. Just give me a call, and I'll be there, my friend!

I really appreciate that. I have done my share of research on this and know many of the medical terms. Most doctors are surprised when I tell them the surgeries I have had in medical terms. The funny part is that the only science I had in college was 3 hours of Astronomy! LOL

  • 5 votes
#10.1 - Sat Aug 1, 2009 2:03 PM EDT
Soovivers

funny part is that the only science I had in college was 3 hours of Astronomy

Maybe you should go test out for your MD ya think?? Could happen.

  • 2 votes
#10.2 - Sat Aug 1, 2009 4:06 PM EDT
USAF Vet-923294

Ohhhh.....wouldn't want to do that. LOL ;0 )

  • 3 votes
#10.3 - Sat Aug 1, 2009 4:14 PM EDT
Reply
LifeTravler

I just finished reading all the installments to your article. I am absolutely horrified! Good grief. They would have probably wanted to restrain me. I'd have wanted to kill somebody. Ben, I am so sorry that you went through all of that. It was SO uneccesary. Bless your heart!

  • 4 votes
Reply#11 - Sun Aug 2, 2009 7:58 PM EDT
USAF Vet-923294

Writing this brought up a lot of anger. That is usually why I do not talk about it or write about it. It also can put a lump in my throat an make my eyes tear up. It was extremely frustrating.

Still, I am alive and kicking. I have been blessed with a wonderful family. I got married after my third surgery and before my forth. If the surgeon had not saved me, I would not have this and I am thankful for that. I think that is one thing that helps me deal with it.

  • 3 votes
#11.1 - Sun Aug 2, 2009 8:09 PM EDT
Perrie

Ben,

I feel really bad that writing this brought up all this anger. I was hoping that it would purge you of it. I hope it was not my follie to tell you to do so. Maybe now that it is out in the light, the wound won't fester, but heal and then you put it away in it's box.

If this has been a mistake, Ben, I am really sorry.

Perrie :-(

  • 2 votes
#11.2 - Sun Aug 2, 2009 10:33 PM EDT
LifeTravler

Ben, I can understand if writing this brought a lot of anger out. But, here's the kicker. If it brought out a lot of anger, then that means that anger was still festering in you after all this time. You have every damned right to be angry about what happened to you. Anger cannot stay inside of a person without doing damage whether you realize it or not.

Besides, a story like yours NEEDS to come to the light. It could help somebody else.

  • 3 votes
#11.3 - Sun Aug 2, 2009 11:45 PM EDT
USAF Vet-923294

I do feel like as if it was good to get this out. Yet, getting over the angry is very hard to do. It isn't anyone's fault beyond those doctors and the system of care I was under, Perrie. So, please do not feel bad. Writing this has helped. I feel better about telling it, but I think I still have a ways to go before I truly get over it.

I guess it is because I get reminders of it all the time when I hurt. It is just easier on good days and harder on bad ones - does that make sense?

  • 3 votes
#11.4 - Mon Aug 3, 2009 12:17 AM EDT
Perrie

Sure does...

  • 1 vote
#11.5 - Mon Aug 3, 2009 12:40 AM EDT
USAF Vet-923294

Well, know this, I am extremely grateful that you and Steph encouraged me to do this. It was a bit scary opening up like this, but it really helps me to know that I may have helped someone else.

  • 3 votes
#11.6 - Mon Aug 3, 2009 12:48 AM EDT
Perrie

Of that I am sure of, especially other people who have to work with with the military medical community.

Oh...I don't know if I mentioned it to you, you know my Cousin Allen stories, well his son Andrew is going off to Afganastan in 3 weeks. Please send any good vibs his way.

  • 3 votes
#11.7 - Mon Aug 3, 2009 12:56 AM EDT
USAF Vet-923294

I can empathize. I worried the whole time my oldest son was in Iraq.

  • 4 votes
#11.8 - Mon Aug 3, 2009 1:19 AM EDT
Perrie

It's good to know that your son came home. It seems these days all you hear are body counts.

  • 1 vote
#11.9 - Mon Aug 3, 2009 11:43 AM EDT
USAF Vet-923294

Sometimes the press skews the view.

Think of it this way (it helped me): There are 38,000 US troops in Afghanistan. There has been a total of 137 deaths. That is only .36% for US troops this year which is one of the highest casualty years.

He has more of a chance of getting prostate problems (one in three).

  • 3 votes
#11.10 - Mon Aug 3, 2009 1:27 PM EDT
Perrie

Thanks for giving me some perspective on the subject. I will be sure to foward it to my cousin.

  • 2 votes
#11.11 - Mon Aug 3, 2009 1:35 PM EDT
USAF Vet-923294

It helped me to know the odds were small. I hope it helps you.

  • 2 votes
#11.12 - Mon Aug 3, 2009 4:19 PM EDT
Reply
lk734505

Your story is a nightmare and needed to be told for the benefit of yourself and for your readers. Sadly, as a military vet, a nurse, and a victim of the health care industry machine may I share that this is very common in ALL health care venues. Military, VA, Public, Private hospitals; it matters not. Despite what they try to sell in their nauseating commercials and glossy advertising, hospitals are filthy, dangerous places staffed at levels as low as the law allows with burned out, overworked employees. Doctors, also terribly overworked, suffer from the most extreme forms of arrogance. They rarely deserve the trust and adoration they demand.

It is a miracle you survived even the first few days of your misdiagnosed illness. How stupid and arrogant those first doctors were. They dismissed such obvious signs and symptoms and failed to perform the simplist of diagnostic tests. I have seen this happen hundreds of times in my career. Sad but true.

  • 1 vote
Reply#12 - Tue Dec 22, 2009 4:00 AM EST
USAF Vet-923294

I think the biggest difference (at especially at that time) was that military Doctors did not need a license to practice and there was no real recourse when they screwed up. Military can not sue for malpractice and the Doctors had no real incentive to do their best.

Thank you for taking the time to read my story and for making a comment.

  • 1 vote
#12.1 - Tue Dec 22, 2009 9:19 AM EST
Reply
Dowser

Ben, I really want to read this story in its entirety-- can you provide links to part 1 and 2?

Thanks!

  • 1 vote
Reply#13 - Tue Dec 22, 2009 11:45 PM EST
USAF Vet-923294

They are at the very top under the first paragraph. Then the links are at the bottom of each article to take you to the next (I think - lol).

  • 1 vote
#13.1 - Tue Dec 22, 2009 11:52 PM EST
Dowser

Thank you, dear Ben-- I don't know how I missed these!

  • 1 vote
#13.2 - Wed Dec 23, 2009 12:26 AM EST
USAF Vet-923294

No problem my friend. I miss things all the time......

;0 )

  • 1 vote
#13.3 - Wed Dec 23, 2009 12:30 AM EST
Dowser

Ok, I'm back.

I am horrified. And appalled at the terrible care you received. And it makes me mad. Is THIS the way we treat our soldiers? I feel the same way as when I saw Born on the 4th of July. I am ashamed of my country.

You describe the feeling of being a guinea pig oh so well, and with that, I can empathize a little. The indignity of being treated like a piece of meat-- lying there naked, with an audience of unknown, gawking strangers-- I understand.

I have always compared being in the hospital to being a prisoner of war. You are stripped naked, left to lie in your own mess, uncovered, you can not exercise your own will about something as simple as going to the bathroom-- you are in terrible pain, drugged, (if you're lucky!), and every movement you make-- inlcuding those of your innards-- is monitored. No privacy, no decency, no help. I didn't suffer the pain you did, because, after all, I was a heart patient and we can't upset heart patients! But I lay there in agony for quite awhile with the morphine pump and the call button, 6" from my hand, and couldn't reach them. I'm little! Put the dang thing where I can reach it!

Just like a POW, you don't know how long you'll be there, and you are completely at their mercy while you are there. I can't even guarantee that they have your best interests at heart, and after reading these articles, I'd have to say NOT.

Thank you so much for sharing this. I can relate to a part of it-- and can sympathize with the rest. That you have emerged sane is a miracle!

Oh, Ben, I'm so sorry! So very sorry! My poor friend!

(((((((((((Oh, Ben!)))))))))))))

  • 1 vote
#13.4 - Wed Dec 23, 2009 12:59 AM EST
USAF Vet-923294

Oh, Ben, I'm so sorry! So very sorry! My poor friend!

Thank you Dowser. Writing this actually helped a little. I am in therapy for PTSD (took them this long to figure out I had it) and I don't get as angry about this as I used to, but I still break down and cry - just can't help it, wish I could.

It is a part of my life that I wish I had never had. Yet, I know I did and I must work through it and learn to live with it.

Thanks again my friend. The encouraging words mean a lot.

  • 1 vote
#13.5 - Wed Dec 23, 2009 1:25 AM EST
Dowser

Writing stuff down helps a lot! Just to get it out helps. I think we are all processing things that we write about-- I know I do...

If I can EVER be of help, I am here. If nothing else, I can listen, and would gladly take a burden from you... I still cry sometimes, too-- and it helps. God understands. We all have to cry sometimes.

You are a good man, Ben. I know this was hard to write, but I am very glad that you took the time to explain your feelings to us.

  • 1 vote
#13.6 - Wed Dec 23, 2009 1:30 AM EST
USAF Vet-923294

Thank you Dowser.

  • 1 vote
#13.7 - Wed Dec 23, 2009 2:12 AM EST
Reply
keith in DSM

I did not know these articles existed until today. Just found them through the Vinny Awards. Believe me when I say your story has been on the top of my mind for about a year. I am all ecstatic now that I know you got them written. Congratulations, thank you and best wishes.

  • 1 vote
Reply#14 - Wed Jan 27, 2010 10:46 AM EST
USAF Vet-923294

Thank you Keith.

  • 1 vote
#14.1 - Wed Jan 27, 2010 12:26 PM EST
Reply
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